If you have questions about the Registry, please contact the Registry Coordinators at coordinator@parentprojectmd.org. You can also set up a meeting with a Registry team member by using the form below. Choose the option titled “Genetics, Clinical Trials, & The Duchenne Registry.”

PPMD GENETIC COUNSELORS CAN HELP YOU WITH:

  • Joining The Duchenne Registry and getting the new Registry app on your smartphone
  • Reviewing your or your child’s genetic test report and helping you understand the results
  • Coordinating FREE genetic testing (including carrier testing) with your local healthcare provider through our Decode Duchenne program
  • Determining who else in your family could be a carrier of the Duchenne or Becker gene variant and who should be tested
  • Discussing options for future pregnancies including what prenatal or preconception genetic testing is available
  • Reviewing research studies and clinical trials that may be a good fit for you or your child

Just select “Genetic Counseling, Trials, & The Duchenne Registry” below, and choose a time slot that is convenient for you. Enter your phone number, and one of our genetic counselors will call you on the specified date and time. It’s that simple!