DuchenneConnect Australia


DuchenneConnect Australia Launches on June 5, 2017

Last year advocates from Save Our Sons Duchenne Foundation (SOS) approached Parent Project Muscular Dystrophy about partnering to have a patient report registry in Australia. They were worried because at the time there were no clinical trials in Australia. This needed to change.

They knew DuchenneConnect, PPMD's patient registry, provided critical data for planning clinical trials and research and recruited for many trials and research studies in the United States. They wanted this powerful tool for their families in Australia. They were committed to making Australia a more feasible place to conduct clinical trials. Having a patient registry was part of the solution. And while DuchenneConnect already allows anyone in the world to join, having an Australian specific portal would give them the advantage they needed to drive more trials and research to Australia.

Today, in collaboration with Save Our Sons Duchenne Foundation, we are happy to announce that DuchenneConnect Australia has launched!  Read the Press Release here.

Read the full PPMD blog on DuchenneConnect Australia.